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Real members of MyMigraineTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

What Triggers Your Migraines And How Do You Manage Them? 🤯🌩️

By A MyMigraineTeam Member • 55 answers

How Do Beverages With Caffeine Affect Your Migraine?

By A MyMigraineTeam Member • 88 answers

What Are Your Top Tips For Managing Migraine And Headaches?

By A MyMigraineTeam Member • 18 answers

What’s One Thing About Migraine That People Rarely Discuss But Should?

By A MyMigraineTeam Member • 28 answers
1588 questions

How Do You Deal With People Who Do Not Understand Migraines?Any Advice?

A MyMigraineTeam Member asked a question đź’­
Grand Rapids, MI area

I am dealing with one person who does not get migraines and she does not understand the help I need, the activities I can not do when I have one, how sluggish I feel after it and that I can not give it my all when I have a migraine etc. How do you get your needs met but not be rude to the people who do not understand?What helps them to understand , listen to you, or be more willing to help you?Really struggling with these type of interactions. Thanks for your help.

A MyMigraineTeam Member

Have you educated yourself on what exactly a migraine is? It is not just a headache & they tend to run in families. Migraines are a neurological disease. People who suffer from them are wired… read more

October 27, 2020

Migraines Causing Pain Down Anyones Neck Shoulder And Arm?

A MyMigraineTeam Member asked a question đź’­
Vail, CO

I have been in PT for almost 3 months for my right arm/ neck/ shoulder pain that happens after bad migraines. It had just gone away after 2.5 months of PT this week i was supposed to graduate after taking a week off to see if i could keep up with exercises on my own and then i had a migraine 2 nights in a row and pain is back. As well as the exhaustion that goes with pain. Does anyone else get the nerve pain with migraines. Its fairly new for me and very frustrating! Had MRIs and nothing! Also… read more

A MyMigraineTeam Member

It is true that if you keep doing your PT exercises that you learned that you will continue to improve. I've been doing PT exercises on and off since I was 16. But five years ago after I was forced… read more

June 18, 2020

Has Anyone Tried The Migraine Infusions?

A MyMigraineTeam Member asked a question đź’­
Marion, IL

I have had migraines for 10 years. Getting worse 15-20 a month. I have tried Botox, Aimovig, emgality, imitrex, topomax, naratriptan, depeco. Nothing works more than a month. I have been hospitalized several xs because cocktail they give at ER does not work. They gave me DHE infusions thru a central line. One every 8 hours for 4 days. It’s a very strong drug w a lot of side effects. The infusions they are talking about are once every 3 months thru IV. Has anyone tried them?

A MyMigraineTeam Member

I have been dealing with it for awhile.. but thank you

February 21

Do Any Of You Spend The Day After A Bad Migraine Sleeping And Feel Totally Exhausted?

A MyMigraineTeam Member asked a question đź’­
Lskewood
A MyMigraineTeam Member

Thanks for the hug!

October 28, 2020

Have Any Of Y’all Taken Keppra?

A MyMigraineTeam Member asked a question đź’­
San Antonio, TX

My epileptologist prescribed this medicine about a month ago, for seizure-like symptoms and migraine. Started taking it about three weeks ago. Began to have really bad intermittent sleep, though, and bad mood swings. Did help some with the pain, and feelings of deja vu, and blanking out. Just wanted to get an idea of what y’all’s experience with this drug has been like.

A MyMigraineTeam Member

Thanks “Frogs”! I greatly appreciate your response and invite
Over the course of the last decade I began to feel very abnormal- lots of spaced out feelings, deja vu (feeling like I’m starting all… read more

July 9, 2020

Coma With Migraine

A MyMigraineTeam Member asked a question đź’­
Ashburn, VA

Has anyone heard of someone going into a coma from a very very bag migraine?

A MyMigraineTeam Member

Hi I havent heard of it but my neurologist did mention it to me when I was 1st diagnosed with hemiplegic migraine that if I didnt mind myself,takes meds and if we didnt get them controlled etc it was… read more

June 7, 2020

How Long Should A Migraine Last?

A MyMigraineTeam Member asked a question đź’­
Port Saint Lucie, FL

Hello, I have suffered with migraines for 30 years now. Getting them at the age of 8 is hard enough as it is, but as I grew up the headaches would last longer. about 5 years ago, I got a headache that lasted 8 days. I thought I was going to die, seriously, I think at moments I actually prayed to god saying "I'm not ready to die please don't give me a brain aneurism at 33 years old!!!"
I finally caved and gave in t my husband who was pleading me to go to he hospital. ( I did not want to get out… read more

A MyMigraineTeam Member

If a neurologist tells you to find another Dr. it is because they no longer know what to do w/you. That happened to me twice. So I found another Neurologist. Find one that specializes in headaches… read more

October 27, 2020

I've Been Tested For Covid-19 Quarantined Inside

A MyMigraineTeam Member asked a question đź’­
Bamberg, SC

My muscles have been sore my body has been aching it's like the inside of my chest near my organs and heart they've been hurting as well to a little nausea but no vomiting constant headaches headaches toothaches been getting plenty of rest and drinking water I can't be dehydrated some of the symptoms from HIV which I know I don't have because I've been tested but only had one intimate partner and I didn't use protection so I don't know if that could be the cause or could it just be my sinuses

Has Anyone Tried Trokendi XR?

A MyMigraineTeam Member asked a question đź’­

I am two months into this prescription, which I know you have to give new medications time, but i am getting back to a point where my migraines are becoming more consistent even though I am still taking this daily. Do yall have any suggestions?

A MyMigraineTeam Member

I am taking Gabapentin and it works. My headaches have subsided. Maybe you should try that.

May 26, 2020

I Have Severe Anxiety And Vertigo With The Worse Headache Is This Migraine

A MyMigraineTeam Member asked a question đź’­
Tarpon Springs, FL
A MyMigraineTeam Member

No. It's more of lightheaded

May 19, 2020
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