Thanks “Frogs”! I greatly appreciate your response and invite!
Over the course of the last decade I began to feel very abnormal- lots of spaced out feelings, deja vu (feeling like I’m starting all over, yet I did what already), smelling scents that weren’t there, seeing auras, and very frequently the ice-pick-to-the-side-the-head feeling that could last a few minutes to a day.
Got referred to a neurologist early last year, did some tests for Parkinson’s and MS (thankfully I didn’t have any of those). Then I got a new neurologist, referred to as an epileptologist (never knew such a doc existed) last summer. When I got numb on one side of my body and informed him (my epileptologist), he felt I needed to do an MRI. When I did it, they found out that I had Mesial Temporal Sclerosis. My epileptologist suggested I had some TL seizures (temporal lobe) which I’ve found out is different than general epilepsy.
So, I have chronic migraine, mesial temporal sclerosis, and a touch of restless leg syndrome.
Doing ok now, but I take things a day at a time, and thankfully allowed to work from home.

Does your eptologists help you with your migraines? Is he a migraine specialist?

Yes I am on it .have been for years. I do think it can affect my mood, and can make me drowsy. Helps my epilepsy be contro ll ed. I know I am not often thirsty on it. Do you know about myepilepsyteam.com? Do you notice it helps the migraines? I would give it some time to see if you get used to it. I am on the above website as well. You can join my team there too.