Connect with others who understand.

Sign up Log in
Resources
About MyMigraineTeam
Powered By
Real members of MyMigraineTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Status Migraine Issues

A MyMigraineTeam Member asked a question πŸ’­
Denver, CO

My name is Jen and I have suffered with migraines for 25 years. In the past few years they have gotten considerably worse. I end up with a status migraine every year now that is hard to break. This year I haven't been able to break it. It's been 4 months. I was wondering if anyone had any ideas. I take Zonegran daily, Emgality monthly, nerve blocks every 4 weeks, Botox every 12 weeks. I also have Frova, Nurtec, Torodol, Phenergan, Zofran and Compazine. I have used the infusion clinic for… read more

September 6, 2021
β€’
View reactions
A MyMigraineTeam Member

I too have nonstop migraines now since 2007 or so. I finally decided to learn to accept this is my lot in life. I haven't given up. I'm currently taking botox, Aimovig and sumatriptan, plus I do Promethazine, CBD oil and T-Relief as my daily attack against it. But by accepting it, I am much calmer. I used the PainTrainer.org methods to distract myself from the pain. I use relaxation and mindful meditation on bad days to give me rest. But now I intentionally focus on little things that make me smile like the color blue, my dog, my flowers, cup of tea or coffee. I call this mindful appreciation and it allows me to be happy inspite of the pain. I figure the migraines aren't ever going to go away for good, so I need to learn to find joy within this life of pain. Check out PainTrainer.org to learn methods of dealing with and living with pain.

September 9, 2021 (edited)
A MyMigraineTeam Member

Jen,
A thorough look at your treatment plan that in depth that looks at supplements, diet, meds, exercise, meditation yoga, etc. of what works and has not worked. Other alternatives available? CKay

September 26, 2021
A MyMigraineTeam Member

I have no advise for you but I am sending you some strong healing energy. You need a BREAK!!! Sorry that you are experiencing so much pain for so long. Hang in there

September 25, 2021
A MyMigraineTeam Member

AnnR,
Hello! Thank you for sharing your experience, and sharing the website. CKay

September 9, 2021
A MyMigraineTeam Member

I have tried medical cannabis with mixed results. Sometimes it helps, sometimes not. It can be hard to use unless I get the timing right as I have a toddler and don't want to put everything on my hubby.

September 6, 2021

Related content

View All

Timing To Take Steroid?

A MyMigraineTeam Member asked a question πŸ’­
Cypress, TX

Can Oversleeping Trigger Migraines

A MyMigraineTeam Member asked a question πŸ’­
Cypress, TX

Wondering Just How Many On This Site Have Vestibular Migraines As Opposed To Migraines? Two Totally Different. Seems Most Have The Latter.

A MyMigraineTeam Member asked a question πŸ’­
Colorado Springs, CO
Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data Policy and Privacy policies.Your privacy is our priority Lock Icon
Already a Member? Log in