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70 Yrs Old Recently Diagnosed W/ Oral Mandibular Dystonia, Migraines Returned After Menopause, Diet Stress Related, Meds For Oc

A MyMigraineTeam Member asked a question 💭

I am 70 yrs old. Developed migraine at 3yrs old. Changed thru years, greatly lessened as approached late teens and 20s, once in a while 30s, 40s , some at 40s, nearly none in 60s then late 60s returned. Diet /tyramine and stress related. Have been OCDish as psychiatrist called it since 11years old. Recently diagnosed after endless dental and couple of neurologist as having oral mandibular dystonia left side deviation. I have to think it is related. OCD acts up and aggravates dystonia and goes… read more

January 2
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A MyMigraineTeam Member

I've been managing the chronic migraines I have had with Botox injections every 3 months at the doctor's office, Ajovy injection which I do monthly, then pain management doctor and I have just started something new - occipital nerve block. We are hoping that it works to lower other medications but will cross bridges as we get to them one step at a time.

I began having severe chronic migraines after a brain surgery in 1995 took place. It has been quite difficult to find the right combination that works but I think the specialist and I may have located a positive direction for help.

We did the Occipital Nerve Block on Dec 30 2024 the following day there was a short period of pain on the left side but it did get taken care of with Ubrelvy. I've been doing well since and have not had any severe levels of pain like they had been acting out. Only time will tell where we go from here.

January 5
A MyMigraineTeam Member

I agree 100%.
I have fought migraine for over 60 years. Fortunately, I’ve had pretty good luck with sumatriptan throughout. From shots and now nasal spray. It’s been a battle! But it is affordable. I’ve tried numerous abortive treatments, because I don’t want to have meds in my body constantly for the less than chronic headaches I now get. I sometimes go a few months without them to week long ones. None of the other meds have been as helpful.

January 5
A MyMigraineTeam Member

I do Sumatriptan for acute migraines. Works well for that as long as I don't take it frequently. I am seeing a new neurological practitioner in a few weeks for some advice on migraine prevention. Will see what she has to say. I have no desire to go on any antidepressants or anti seizure drugs for headaches. I may consider Botox and would like to consider neuromodulation devices. My insurance won't pay for the newer drugs that have come out for migraines. Our complex health care system with drug companies hijacking prices does not serve us well.

January 2
A MyMigraineTeam Member

I tried amitriptyline years ago with disastrous results. I ended up in the hospital with the negative psychological effects of that medication. Beta blockers have their own side effects and mindfulness etc is like standing in front of the ocean and telling the tide not to come in. Just not going to say it enough to really stop it if you think in those terms. Appreciate the input but I already know I need more Botox. I am trying to find meds that work together effectively and dont cause more problems than they help. That seems to be a dilemma for so many now. You take one thing and have to take something else to counteract what you got from taking that med.

January 2
A MyMigraineTeam Member

Managing migraines, stress, and OCD together can be challenging, but there are options to explore. Stress management is crucial, as it can help reduce both migraines and dystonia symptoms. Techniques like mindfulness, meditation, or therapy may help. For OCD, medications like selective serotonin reuptake inhibitors (SSRIs) Show Full Answer

Managing migraines, stress, and OCD together can be challenging, but there are options to explore. Stress management is crucial, as it can help reduce both migraines and dystonia symptoms. Techniques like mindfulness, meditation, or therapy may help. For OCD, medications like selective serotonin reuptake inhibitors (SSRIs) are often used, but they should be chosen carefully to avoid triggering migraines. Discuss with your neurologist or psychiatrist about balancing treatments, including adjusting Botox doses or exploring other preventive migraine medications like beta-blockers or antidepressants like amitriptyline, which may help with both migraines and mood.

January 2

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