Hi Shelly and Dawn!! I have recently been diagnosed with vestibular migraines and feel like my world has been turned upside down!! I am living a nightmare!! I have been in some dark places lately. It is just beginning and I have no idea how to navigate life.
My big trigger is perfume and it's in everything!! Some stuff says it's fragrance free or unscented but it's not!! I am struggling at home, at work, in public!! I get triggered and get foggy brain bad, dizzy, nauseated and if don't get away then I have a vertigo attack. Last one was worst I have ever had. NOTHING could stop it. I got sick, had diarrhea and was terrified cause it wouldn't stop. I see my Dr on Dec 4th. The meds they are suggesting have awful side effects. Can u help

Hi Shelly, that must be awful for you, its not something I have experienced although I do get Vertigo symptoms every couple of years. Im so glad you are getting an MRI to see whats happening and truly glad its not anything fatal. You have lots of specialists there comparted to here but you have to pay so much! Here in Ireland we are very lucky, the lower paid get free health care and higher paid dont have very high insurance although at times it can be quite expensive. Let me know how you get on and have a lovely safe Christmas period.

Vestibular Migraine is more of a “balance problem” and seldom are a typical “migraine headache”. Something that was not mentioned in the earlier response is the fact that although it does cause vertigo, most people associate vertigo with a spinning sensation. My vestibular migraine disorder does not yield a “spinning sensation”. Instead, I feel like I have been out on a ship for a month and after debarking, I never did get my land legs back!
The only way I feel normal is when I’m laying down with my feet up off the ground and that is my happy place! Because I don’t experience a spinning sensation I have never suffered from any type of nausea, thank God!! I have been suffering with this for six years now, and have tried numerous things from medication’s, to vestibular therapy, to meditation, and also being treated in a large machine called a Gyrostim which is like something out of NASA and actually did work after a week but they recommend two weeks of treatment and it was all out-of-pocket cost and I couldn’t afford it 😫….. and now I am seeing a neurologist who just ordered an MRI of my brain and I’m finding out that there’s some things going on in my brain that might be contributing to this nothing fatal, but could maybe have something to do with it.
However, today, I just got a letter in the mail from my neurologist stating she is leaving the practice so I am now desperately looking for a vestibular neurologist in the central Florida area so if anyone out there knows of someone they can recommend who is reputable, I would greatly appreciate your feedback!
Wishing everyone a very happy and safe, and peaceful holiday!