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Does Anyone Have Pppd From Vestibular Migraines?

A MyMigraineTeam Member asked a question 💭
Manalapan, NJ
January 16
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A MyMigraineTeam Member

Nj. Have an upcoming Neurotologist appt. to see if there’s anything else I can take with the Butterbur Extract tablets. Feel much better just keep getting pressure from my eyes up to the top of my head.

March 15
A MyMigraineTeam Member

Where do you live? There are headache centers around the country.

March 13
A MyMigraineTeam Member

My doctor never talks to me about pain. When I go in. I fill out a form. Mark what hurts which is my neck and facial area. I feel I struggle just about everyday with neck pain, dizziness, nausea. Most days I don’t even have the pain. It is true misery likes company because I am so relieved to hear other people say they don’t always have pain. I only get to see an ARNP or a Physician assistant but they are both young girls and just seem to gaslight me on such complaints. I use Qulipta 10mg (anything else hurts my stomach). My neurologist say they don’t treat nausea, dizziness or anxiety. Then my primary gets angry that they don’t communicate with her. I am like this is no help to me. I am the one suffering and no one helps or listens.

March 12
A MyMigraineTeam Member

Now my ENT believes it’s positional vertigo and the crystals are stuck. Referred me to Otologist. Specializes in ENT. 🤷‍♀️

January 29
A MyMigraineTeam Member

Persistent postural perceptual vertigo (PPPV) absolutely 💯 percent I have this everyday! I've been told it's supposed to be only while standing, but i also get it laying down sometimes.

January 27

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