Brandi - That sounds horrible. How did they diagnose that? I am so sorry you have had to go through all that. You are a strong person.

"As for the comment that the gentleman made about being tougher,it's not about toughness,it's about getting though this pain when your pain is 10 out of 10 almost almost everyday. It very exhausting.😔"

Exactly!

Yes,I'm constantly in touch with my Neurologist. The problem is that I also suffer from something called Intercranial hypertension. It is a very rare brain condition where your brain thinks that there is a big tumor in there & it makes extra spinal fluid. The excess spinal fluid puts pressure on your optic nerves causing brain swelling and blindness. Ive already lost sight in my right eye from it. It sometimes mimics a severely bad migraine but it's not that. I've already had 65 brain surgeries to put shunts in my brain but my body keeps on rejecting them. As for the comment that the gentleman made about being tougher,it's not about toughness,it's about getting though this pain when your pain is 10 out of 10 almost almost everyday. It very exhausting.😔

I don't know if that is related to the shots or not. I've never experienced it. Did you call your neurologist?