Does Anyone Experience Auditory Migraines?
I have chronic migraines with aura which I have been trying to manage for many many years. I have started to experience some other symptoms (balance issues) more recently which I thought was a separate issue. However while doing self research the subject of auditory migraines came up which I was not aware could be a possibility. I am curious if others experience this and what might be an indicator of connection to chronic migraine if it's possible to progress to thos additional symptom (it is… read more
Yes, music playing! You can hear a toon and a singer nearby but I can’t understand the words. It’s all muffled. It might be Dianna Ross, Country music or Rock a Billy. Things I don’t usually… read more
What Are Your Top Tips For Managing Migraine And Headaches?
It’s Migraine and Headache Awareness Month! How do you stay positive despite the challenges?
To be honest, this sounds so selfish, but I do what I need to help keep my M at a minimum, or at least less intense. I need quiet, can't do groups of people, and I lie down on the floor whenever… read more
Any Folks Have Just Visual Aura Migraines With No Headache ?
Yes, I didn't know that was a thing! I get the aura without migraines ALL the time!
I Have Vestibular Migraines. The Only Symptom I Have Is Chronic Vertigo. It Is Debilitating. Any Advice On How To Live With It?
That’s me. I feel fine when I’m on my feet. The last few weeks I l have been so bad. I’ve been bedridden. I was falling daily and thankfully haven’t been hurt. I sent a message to my doc that… read more
Memory Loss
Howdy again, Migraine Warriors. I'm dealing with a symptom that seems to have dual causes & I'm curious who else struggles with it & how they deal with it, especially ways to reverse the effects. Memory loss. Like, severe dementia-style memory loss. Scary, will-i-wake-up-tomorrow-&-not-know-who-i-am scary. My causes seem to be migraine compounded by years of gabapentin (neurontin) use. I've gotten several responses from my PCP about it from 'your only option is to quit the gabapentin & hope for… read more
my doctor started me on memantine, which it what they prescribe for people with dementia. Too soon to see if it helps
Has Anyone Had To Wear Sunglasses At Work And Had People Complain About It And Then Need A Doctor's Note?
Today I had a really bad one and wore sunglasses at work. Lots of people asked me why and I told them. How do you deal with this?Every time I do this lots of people ask me about it and someontimes it is the same people. I get tired answering them. Also at the end of the day my boss said several people complained about it and asked me if I had a doctor's note on file for this. I said no. She then said she had to contact some group and then go from there but would probably need a doctor's note… read more
Yes. I do. I even wear them around the house to help with light sensitivity!!
Migraines And Relationships. How Have Migraines Affected Them?
I have been in a few relationships and I can say from experience that some people don't want to deal with or be in a relationship with someone with Migraines.
I have had them tell me that my Migraines are a problem for them or that they don't want to deal with them. I didn't ask for them but I deal with them. How would they feel if they had them and someone treated them like that. This is why I no longer date. Not worth the hassle.
@A MyMigraineTeam Member, finding a supportive partner is so crucial. My ex-husband & even my child told me that I was over exaggerating. They got some special words 🤬, if you catch my drift. Lol. I… read more
If Married And You've Been Dealing With Chronic Pain For Years How Has It Affected Your Marriage?
After five years of severe daily migraines that have affected my nervous system and caused pain to spread to other parts of my body, my marriage has suffered greatly. I keep a lot to myself but my husband is still suffering from empathy fatigue. You can only hear about how much pain someone is in for so long before it becomes the same as hearing the weather report. I do as much as I can. I keep the frig stocked and hired a house keeper but it's the emotional support I miss so much. The hugs and… read more
You are lucky to have a husband that cares that much.
How Many Of You Suffer From Depression/anxiety Along With Your Migraines?
Daith Piercing
Anyone have any info on a Daith piercing? I am considering it, but need more information.
I have had mine for 35 years and it hasn't worked. I still get migraines frequently. Not worth it to me.