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MyMigraineTeam asked a question 💭
San Francisco, CA
May 21, 2024
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Answer Summary

Members passionately dismantled the misconception that migraines are just bad headaches, emphasizing that migraine is a complex neurological... Read more

Members passionately dismantled the misconception that migraines are just bad headaches, emphasizing that migraine is a complex neurological disease with symptoms ranging from terrifying auras and vision loss to speech difficulties, cognitive impairment, nausea, and full-body weakness that can last for days. Several members shared practical strategies including catching migraines early with medication and caffeine, keeping rescue medications accessible, cooking from scratch to avoid food triggers, tracking patterns, and advocating fiercely with medical teams who often dismiss the severity. A recurring theme was the deep frustration of being told to simply take Tylenol or push through it, when in reality migraines can be disabling and unpredictable, with many members finding solidarity in educating others that migraines are neurological events beyond their control, not psychological issues or signs of weakness.

A MyMigraineTeam Member

That a migraine is just a bad headache.
Migraine is a neurological disorder. It is a chronic condition that has many symptoms, often effecting your entire body and emotional and mental wellbeing.

May 21, 2024
A MyMigraineTeam Member

Just because the trigger had passed. You are not immediately well and ready to carry on

May 21, 2024
A MyMigraineTeam Member

That a migraine can't possibly last for more than a day

May 21, 2024
A MyMigraineTeam Member

That it’s possible to ignore the pain & go on with your day.

I certainly can’t do this. How do you ignore pain that affects everything. Cognitive impairment, nausea, I literally can’t think straight about anything.

May 21, 2024
A MyMigraineTeam Member

"Migraines? Oh, I get Migraines too. Just take Excedrine for Migraines. It stops it immediately."

And since my migrainesare set off by fragrances..."Oh, I'm sensitive to perfume too" while they're wearing it, living in a house with plug-ins and using Gain + Gain boosters. Yeah, right.

May 21, 2024

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