Questions & Answers

Has anyone heard of migraines causing demyelination disease? I’ve had chronic migraines over 10 years and have never heard this. I recently had a conductive nerve test and it showed demyelination disease of the central nervous system. Basically the covers of the nerves are damaged. My neurologist said this was a result of chronic migraines but I’m not so sure. Why am I just hearing about this now after 10 plus years?!! I’m just mind blown...

I recently had a lot of testing done for some answers as I’ve been experiencing symptoms I know aren’t migraine related. I had conductive nerve trsts, MRI, bloodwork, etc. I just came from neurologist to go over test results & I now have more questions than answers. I had a nerve test done and it showed demyelination disease in the central nervous system which is pretty much nerve damage. I asked my neurologist about this and he said it was related to my chronic migraines but I’m not convinced &amp… read more

I am constantly in pain 24/7. The lowest number I get to on the pain level scale (1-10) is a 3 and that's rare. I am completely fatigued all of the time and can only work part time. I have depression and anxiety and recently gaining quite a bit of weight which is making my depression that much worse. I have been trying to eat a bit healthier but I usually have to anyways because of my health issues. I want to be able to workout but unfortunately most of the time I can't even get out of bed let… read more

Looking into trying Aimovig. Wondering if there is anyone who has tried this? Are there any side effects I should be aware of? Does it help prevent like daily bad headaches as well as migraines, like pain level 5-7 (not quite a migraine but definitely painful)? Where do you inject it? What insurances will cover it? Any information on this would be helpful! Thank you!

I've tried almost everything, except the new GCRP meds bc ins. won't cover them. Any suggestions?
I can't take this pain & lack of a life!

Hi all
Apologies if this has been asked, but I can’t find anything in the search bar
I wondered if anyone has experienced worsening migraines since having to wear PPE? I’m a healthcare worker so I am unfortunately spending my days in PPE but this has coincided with longer lasting and more intense (and impossible to manage) migraines. My GP has now put me on beta blockers and believes my PPE is responsible. I’m feeling totally fed up with the world we are living in, but now my job and the… read more

Just woke up and found this team. So hello! I'm interested in talking with others who might have a similar aura that I have. It's what I call "The Lava Light Effect". About 50% of the time when a migraine is coming on, my vision goes to nearly black with purple and green glowing lights that bubble back and forth like a 70's era Lava Lamp. Anybody else have this happen?

I am currently suffering from an unbreakable migraine headache that won't let up and won't respond to home treatment.