Connect with others who understand.

Sign up Log in
Resources
About MyMigraineTeam
Powered By
Real members of MyMigraineTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Has Anyone Been Given All Sorts Of Off-label Meds For Their Headaches?

A MyMigraineTeam Member asked a question 💭
Souderton, PA

I mean anti-seizure meds, anti-depressants, heart medicine.

October 14, 2023
•
View reactions
A MyMigraineTeam Member

They initially put me on amitriptyline.... the side effects all hit.me at once, including intense nausea and made me borderline narcoleptic during work (I work a heavy labor job around equipment upwards of 3,000 lbs) after 3 weeks of no migraine improvement and all the extra issues, I stopped taking it. Then they offered muscle relaxers at an even lower dosage because I'm so sensitive to medicines. I refused since it would be hazardous around my work.

November 4, 2023
A MyMigraineTeam Member

Yes, my neurologist o
Put me on an Alzheimer's memory drug. I took it for 2 months. My new hair stopped growing in. There was a hole in my scalp. The med wasn't helping me memory either. I tapered off the med. Taking Topiromate for Migraines. It's a seizure and binge eating med. It can cause memory problems. Migraines can cause memory problems. Clonopin might have been helping me avoid Migraines. Because when I had to stop taking it cuz it's a Benzodiazopine (they've been associated with Alzheimer's) I got tons of Migraines. Buprinorphine caused Migraines for me. Had to take that med to get off Methadone. Never had Migraines on Methadone. But now have Migraines on Tylenol #3 & Tramadol (a synthetic opioid). Am not liking to take any meds now due to their side effects!

October 14, 2023
A MyMigraineTeam Member

I take metroprolol and was put on sumatriptan, but make my bp go in the 180's so no Triptans for me.

October 17, 2023
A MyMigraineTeam Member

Yes! I take Topiramate, an anti-seizure med. Plus Gabapentin, Cymbalta, and for immediate relief I have an eye drop, Timolol, that actually goes under the tongue. Then, for relief on days none of these work I have Olanzapine. I've only used that twice though. I break one in half and in 1/2 hour if I need to I take the other half. I have a headache specialist. So, I consider myself lucky. Before him, I was on the usual triptans and such. But I have a terrible family history of heart disease and I have had a bout of heart failure. So the triptans are bad for me. So he changed everything around.

October 14, 2023
A MyMigraineTeam Member

I use gabapentin along with a protocol of vitamins and herbs as prescribed by the Headache Clinic at U of Washington. The gabapentin seems to help and I can dose according to how I'm feeling and amount of migraines.

October 14, 2023

Related content

View All

Has Anyone Tried Klonopin For Their Headache?

A MyMigraineTeam Member asked a question 💭
Souderton, PA

Is It Safe To Take Sumatriptans & Excedrin Migraine At The Same Time?

A MyMigraineTeam Member asked a question 💭
Minto, AK

Does Anyone Have "New Daily Persistent Headache"? Am I The Only One?

A MyMigraineTeam Member asked a question 💭
Souderton, PA
Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data Policy and Privacy policies.Your privacy is our priority Lock Icon
Already a Member? Log in